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Hope for Jackson

His Life

This is Jackson’s story.

Jackson as a young boy on his birthday, wearing a party hat and holding a toy fire engine.
A birthday

Before 2008

A childhood in Kenya

Jackson Christopher Wangare grew up in Kenya. What survives from those years is what survives for most families — a handful of photographs: a birthday, a new pair of shoes, an afternoon at the coast.

He was a young boy, in good health, with no indication of what was ahead.

Jackson as a small boy standing with his mother on a beach in Kenya.
With his mother

Family

The people around him

Jackson's family have been present at every stage of this. His mother stayed with him throughout his hospitalisation, because his condition needed attention around the clock.

Jackson as a child lying in a hospital bed after the 2008 accident, with a feeding tube in place.
In hospital after the accident · 2008

2008

The road traffic accident

In 2008, Jackson was involved in a road traffic accident. He was admitted to hospital with a serious head injury and transferred for specialist care.

Imaging showed bleeding within the brain and diffuse injury to the nerve fibres that carry signals for movement — the kind of injury caused by violent force to the head.

Jackson in a hospital bed, with his mother and two other children gathered around him.
His family stayed with him throughout · 2008

2008

Intensive care

Jackson was managed in intensive care for over a week, then moved to the children's ward. In that period he had seizures and severe spasms, lost his speech, and was fed through a tube.

He was discharged home later the same year, still with significant spasms, able to swallow with assistance and beginning to form a few words again.

Jackson standing and taking steps with the support of a walking frame, in a red football shirt.
Learning to walk again with a frame · December 2008

Recovery

Learning to move again

Recovery meant relearning movement from the beginning. By the end of 2008 Jackson was standing and taking steps with a walking frame.

He continued as an outpatient, and his speech and mobility improved — to a point.

Over time

Tremors that did not settle

The improvement stopped, and the tremors did not. Jackson's records describe slurred speech and significant spasm and tremor in his upper limbs, severe enough that holding a pencil to write was difficult.

Over the following years the tremors became the defining feature of his condition. His current diagnosis is rubral tremor following the 2008 road traffic accident, with associated walking difficulty, unclear speech and a history of falls.

18 years

Eighteen years of adapting

Jackson has organised his daily life around movement he cannot control. Tasks that take most people seconds — fastening a button, lifting a cup, shaving — take concentration, time, or another person's hands.

He has kept going. A 2025 brain MRI, performed because of his altered gait and involuntary tremors, concluded brain atrophy with no evidence of a space-occupying lesion.

Today

Where things stand

Jackson continues with physiotherapy, which helps him stay mobile but does not reduce the tremors. His clinicians describe symptoms that have persisted despite optimal medical management.

Kenya's National Council for Persons with Disabilities records his disability as physical, under acquired brain injuries, caused by an accident.

Looking ahead

A recommended treatment

In May 2026, following an assessment, Jaslok Hospital & Research Centre in Mumbai strongly recommended that Jackson undergo Vim/GPi Deep Brain Stimulation surgery with a rechargeable pacemaker and directional leads.

DBS may help reduce Jackson's disabling tremors and support greater movement control and independence. Outcomes vary between patients, and it is a treatment pathway rather than a cure.

His story is still being written.

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Deep Brain Stimulation treatment

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